Saturday, February 16, 2013

Limited

My daughter had been sick since she was little. It started with her having issues releasing her breath after inhaling. She would breathe normally and sometimes forget to exhale. It would sound much like someone who had sleep apnea. Then in time that went away. Doctors never could diagnose it.

Next came her "blanking out" for 10-15 seconds at a time. This started off as 5 times a day. Over the years I have taken her to many doctors, specialists, therapists, and psychologists. Nobody knew what was wrong with her. A few told her that she would get over it when she wanted. While I am an advocate for the power of the mind, this was not something that she could stop or even control.

Last November, I took her for annual evaluation with a new psychologist. He said what we called "blanking out" was actually seizures. He referred us to a Neurologist. The neurologist confirmed it was seizures but was unsure if the seizures were epileptic or non-epileptic. So she referred us to one of the top neurologists in the world....Dr Tatum. He interviewed us and has a strong reason to believe the seizures were non-epileptic. He is going to run tests to be sure. He also referred us to one of the world's best psychiatrist....Dr Niazi. Dr Niazi diagnosed her with borderline personality disorder. He recommended dialectic behavior therapy and cognitive behavior therapy. He wanted her treated by Dr Paresh, who lives locally to us. Currently, Dr Paresh is booked until June. But because I work for one of the top hospitals in the world, he is trying to squeeze us in.

I am trying real hard to keep my head on. Some days I want to cry. But I have nobody to cry on. Other days I just want to get away.

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